Privacy Policy


This website is owned and operated by The Corneal Dystrophy Foundation. Our intention is to inform and educate visitors about our work as a community resource and partner to individuals, families and corneal specialists. The Corneal Dystrophy Foundation is committed to honoring the privacy of all those we work with, including visitors to our website and subscribers to our electronic newsletters.


Your right to privacy is very important to us. We recognize that providing The Corneal Dystrophy Foundation with your personal information is an act of trust. When you visit The Corneal Dystrophy Foundation online, you remain anonymous, as we do not require registration to view our website or access information.

We may occasionally ask for your feedback via surveys or other communications to better understand your interests and needs. We will also request information through online forms used to register for a foundation event, order materials from us or join one of our support groups. The foundation does not share or make public any personal information gathered through our website.

If you are an account holder at The Corneal Dystrophy Foundation and you use our secure online system, you provide personal information to authenticate your identity. That information is only used on this site and is not distributed or sold to any other party or site.


Under IRS Code, the following foundation documents are public information:

IRS Forms 990 and affiliated schedules for the past three years.

Exemption letter from the IRS.

Approved application for exemption with supporting documentation.

Lists of our donors, other than those published in the annual report, are not available to the public. We do not reveal the name of anonymous donors to the recipient of a grant.


Throughout our website(s), we offer links to third party sites. Since we do not control those websites, we encourage you to review their privacy policies as well.


If at any time you wish to stop receiving The Corneal Dystrophy Foundation’s electronic newsletters or other communications, delete your information from our system or be removed from our email list, you may unsubscribe from that list as explained in each message or contact us though the Contact form which is available on our navigation ribbon or in the footer of every web page. The Corneal Dystrophy Foundation will not give your email addresses to other organizations; however, we may occasionally send you mailings regarding events, products or services from us or from reputable third parties if we think they may be of interest to you. In such circumstances, we do not provide the organization with your information, but send the mailing ourselves.


We welcome comments and questions on this policy. To share feedback or to request information from the foundation, write to:

The Corneal Dystrophy Foundation
ATTN: Communications and Marketing, Privacy Policy
6066 McAbee Rd San Jose CA 95120
Last Revised: 04/21/2016

Or email us through the contact form at